Tuesday, April 11, 2006

Spring Ahead

We switched our clocks ahead a little over a week ago, but I feel like I am falling back. I did have an IgG IV last Friday while spending seven hours at the Day Hospital. I think the dose of 55 mg was 1/4 of what I received in the hospital over the weekend of March 11. I had also resumed my previous Anagrelide dose of .5 mg per day. But the results of my blood test today show my Hgb is down further to 9.0 and my platelets have increased further to 931. My Factor 2 results have not come in yet. I can sense the drop in Hgb since I get winded quicker, though still managed to work a couple of hours in the yard last weekend.

Dr has now adjusted my Anagrelide to 1 mg per day, back to my original level in September, last year. At that time we had to reduce it within two weeks because it was causing me headaches and a pounding pulse. My Hgb also dropped to 6.4 at the time, requiring a third blood transfusion within 5 weeks. That might have been a result of the Hydroxyurea that I had been taking since my Hgb then held steady for over 3 months. It will be interesting to see what happens in the next week. Haven't I seen this movie before?

But on the bright side, Spring is here. It was sunny and 79 degrees yesterday and still is 70 today, though rain is threatening. There are pros and cons of having my medical care at the University. During these Spring days, all of the students shed their winter clothes and become more active. There are joggers, roller bladers and bicyclists. Not sure if it makes me feel younger or older to share the streets with all this energy around me. I guess I do tend to suck it in and walk a little more briskly. Have to watch more carefully where I drive as well. It is certainly a diversion from sitting around the office.

2 comments:

Anonymous said...

Joel, Hang in there! I know it must be discouraging to see the Hemoglobin drop again. May the Lord sustain you by His grace and give your hope and joy in Him. My prayers continue for you.
Love,
Charlotte

Anonymous said...

What an ordeal! You and the doctors continue to try different approaches. Hope one of them works.

Ken Brandt